April 25th Update

Once again way too long since the last update. There never seems to be a dull moment around here. Michael was finally released from the Hoag Newport inpatient rehab after spending over a month there. On April 4th Michael was discharged. Our kids were on spring break and we did a quick getaway to Palm Springs to celebrate him finally being home with us. Unfortunately, he had an extremely severe drug reaction which landed him in the emergency room in Palm Springs the first day and an early departure back to orange county and straight back to Hoag Newport emergency room. Michael had a reaction to either the chemotherapy that he started or an antibiotic that he was given while in the rehab. It was so severe and he was in so much pain that he was admitted back to the hospital and transferred up to UCLA for several days until they could get his rash and pain come down. I was finally able to bring him home on April 9. We have been figuring out our new normal. Thanks to many family members we now have a caregiver coming for eight hours a day Monday through Friday and that has been an amazing help. Tomorrow is a very big day. Michael and I will head up to UCLA. His first appointment is a follow-up for the drug reaction. We then go to have a brain MRI and after that we head to research for an appointment to find out how the MRI looked and restart him on the trial. He was taken off all treatment medications when he had the drug reaction. Pray that we will have strength and peace no matter what the MRI shows tomorrow.. We continue to be so so incredibly blessed by our community. They have given so much to our family in so many ways and we will be forever grateful. Will post another update tomorrow after we know the results.


  • Betty Tymes

    I read your blog while I was eating my breakfast this morning. Then I went for my quiet time. As I was talking to the Lord I realized you might be on your way to UCLA. I prayed for strength, peace and wisdom for both of you. Then I read from “Jesus Calling “ by Sarah Young. I share one of the verses she used. “Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal.—2 Corinthians 4:16–18
    We serve an awesome God and He will bring you through this!
    Blessings and love to you and your family.
    Betty Tymes

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