Michael

An update…finally

Dear Friends and Family,

We know many of you have been wondering about Michael’s health and how our family has been doing since our last update to all of you in December.  We apologize for the lack of frequent updates, but our lives have been so busy and full of activity on a daily basis that it’s been hard to find time to update everyone via the blog.

As you probably know, Michael spent all of December, including Christmas and New Year’s, at the California Rehabilitation Institute in Los Angeles.  The therapy and care Michael received there was excellent, but unfortunately he could only stay there six weeks.  Also, we learned that Michael would qualify for a clinical trial drug because of the type of cancer he has, in lieu of taking the standard chemotherapy. On January 7th, we moved Michael to the CareMeridian Subacute Services facility in Tustin, CA.  Michael immediately began radiation nearby in Irvine, started the clinical trial drug (BGB-290), and continued to receive physical and occupational therapy at his new rehab facility.

Then on January 21st, we  moved Michael home from CareMeridian. He continues to have radiation treatments five days a week (Mon thru Fri) near Irvine, and every Tuesday he goes to UCLA to meet with the clinical trial team.  Michael has now completed treatment #25 of 30, so only five more to go.  As for his physical and occupational rehabilitation, we have in-home therapists that come several times a week.

Once radiation is completed, about February 19th, they will wait four weeks and then do another MRI.  The new MRI will be compared to the pre-radiation MRI to determine the effect the radiation and clinical trial medication has had on the cancer.  The results will no doubt determine the next steps/treatment(s) going forward.

Today Michael is having another CT scan of his body because he has several blood clots in his arms and legs. He has also been coughing a lot so they want to get a good look to determine what is going on.

We continue to get an incredible amount of support from our church, community, neighbors, friends and family… which is a huge blessing. As you might expect, our journey is long, uncertain, tiring, and it has its ups and downs… but, we know our God is faithful to meet our every need.  Thank you for your continued prayers and all the love and support you have shown us. The song Rescue was playing when they wheeled Michael in for his brain biopsy and then when he had his first radiation treatment he asked them to play Christian music and guess what song came on…Rescue. Thank you for being our “army”❤️

“I will send out an army to find you in the middle of the darkest night it’s true, I will rescue you. I will never stop marching to reach you in the middle of the hardest fight it’s true, I will rescue you.” ~Lauren Daigle

16 Comments

  • Tricia Lamendola

    Thank you for this update. You are incredible and strong, Lori. Michael and the kids are so blessed to have you. Send our love to Michael. We are praying for you all and we love you.

  • Toni Kellerman Jennings

    What a strong family you are! That strength will keep you going through all of this. I am sending you hugs and prayers as you continue to navigate these difficult days. ❤️

  • Kristin Lamendola

    25 sessions down, 5 to go! Keep pushing through.

    Sorry about the coughing and clots. I’m so grateful for Lori’s nursing background at times like this.

    Love to you all. Wishing you some well-deserved, long-overdue rest.

  • Mary Ellen

    You’re a true warrior! Never give up the fight. Blessings to you and your family. Medical science is on the cutting edge. I’m confident you will be the poster boy for success! Sending love and prayers constantly ♡

  • Steve Lankfer

    I love thecoulsonclan !!!!!! Great update. All 6 of you are thought of daily, ADMIRED, and prayed for. Thank you for inspiring the rest of us ❤️👍

  • Will Olstad

    Keep fighting the fight old friend – please know you’ve got a LOT of people out here pulling for you, thinking about you, and praying for you!

  • Larry and Cheri Hill

    Dear Coulson Clan,. We are with you in prayer and doing what we can to support Michael’s in-laws. Of course we pray for all of you knowing what a difficult journey you are on. We will continue to keep you in our prayers. God Bless and may he lay His healing hands on Michael and give all of you the strength you need.

  • Charmaine Kulczyk

    Thank you for the update. My prayers meet you in the middle of the night . I find that you Michael, Lori, your amazing children, your dear parents and family are never more than a thought (or prayer) away. Your journey has touched so many lives. People in our family, church and circle of friends all sending prayers to blanket you in blessings. We are one family indeed. God’s love and faithfulness is awesome.

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