Dear Friends and Family,
We know many of you have been wondering about Michael’s health and how our family has been doing since our last update to all of you in December. We apologize for the lack of frequent updates, but our lives have been so busy and full of activity on a daily basis that it’s been hard to find time to update everyone via the blog.
As you probably know, Michael spent all of December, including Christmas and New Year’s, at the California Rehabilitation Institute in Los Angeles. The therapy and care Michael received there was excellent, but unfortunately he could only stay there six weeks. Also, we learned that Michael would qualify for a clinical trial drug because of the type of cancer he has, in lieu of taking the standard chemotherapy. On January 7th, we moved Michael to the CareMeridian Subacute Services facility in Tustin, CA. Michael immediately began radiation nearby in Irvine, started the clinical trial drug (BGB-290), and continued to receive physical and occupational therapy at his new rehab facility.
Then on January 21st, we moved Michael home from CareMeridian. He continues to have radiation treatments five days a week (Mon thru Fri) near Irvine, and every Tuesday he goes to UCLA to meet with the clinical trial team. Michael has now completed treatment #25 of 30, so only five more to go. As for his physical and occupational rehabilitation, we have in-home therapists that come several times a week.
Once radiation is completed, about February 19th, they will wait four weeks and then do another MRI. The new MRI will be compared to the pre-radiation MRI to determine the effect the radiation and clinical trial medication has had on the cancer. The results will no doubt determine the next steps/treatment(s) going forward.
Today Michael is having another CT scan of his body because he has several blood clots in his arms and legs. He has also been coughing a lot so they want to get a good look to determine what is going on.
We continue to get an incredible amount of support from our church, community, neighbors, friends and family… which is a huge blessing. As you might expect, our journey is long, uncertain, tiring, and it has its ups and downs… but, we know our God is faithful to meet our every need. Thank you for your continued prayers and all the love and support you have shown us. The song Rescue was playing when they wheeled Michael in for his brain biopsy and then when he had his first radiation treatment he asked them to play Christian music and guess what song came on…Rescue. Thank you for being our “army”❤️
“I will send out an army to find you in the middle of the darkest night it’s true, I will rescue you. I will never stop marching to reach you in the middle of the hardest fight it’s true, I will rescue you.” ~Lauren Daigle